Step 4:

     FAMILY, please click the link to the right and join our Facebook Family Support Group. This group is designed to SUPPORT any family member of the person diagnosed with Lamb-Shaffer Syndrome. In this group, family members can chat and know that they are speaking in confidence to other families dealing with the same circumstances.

Welcome to our community! 

From all of us at the Lamb-Shaffer Syndrome Organization and our community, we want to welcome you to our small but strong unity. We know this diagnosis can be overwhelming. You were probably told that there were only a handful of people diagnosed in the world. It probably took you years to find this diagnosis. You were probably told at one point that there was nothing wrong with your child. We have all been there and as of right now, you are no longer alone. You have a family, a place where you belong and a support group that will be here for you through it all. 

Step 3:

     ​PARENTS, please click the link to the right and join our Facebook Support Group. We keep this group to parents/primary caregivers in order to protect the privacy of our families. This group is for support through all aspects of this diagnosis. Please answer the questions asked before joining. 

Step 2:

     "LIKE" our Facebook page by clicking the link to the right. Please share our posts and encourage family and friends to do the same. The more our posts are shared, the greater ability we have to find more people in our community. As our numbers grow, we will have more access to larger grants in order to fund research. 

If you are on this page, someone you love has recently been diagnosed with Lamb-Shaffer Syndrome. I can assure you, you have come to the right place. We have set up an easy navigation system to make sure you are taking advantage of everything our community has to offer. Whether you are a parent, sibling, aunt, uncle, grandparent or a family friend, we are here to support you through your journey. Below you will find some steps to take once you're diagnosed. If you have questions about proper testing for Lamb-Shaffer Syndrome, please click the "contact us" button and someone will get back to you shortly. 

For inquires, please e-mail us at: 


Lamb-Shaffer Syndrome 

Step 1:

     PLEASE CLICK THE LINK TO THE RIGHTin order to register your child in our database. By entering your information into this database, you are providing the most accurate patient information to The Lamb-Shaffer Syndrome Organization which is incredibly important.