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Lamb-Shaffer Syndrome ‚Äč

Meghan Yarnall, the co-founder of The Lamb-Shaffer Syndrome Organization, is the mother of a special needs child with a rare mutation of the SOX5 gene (Lamb-Shaffer Syndrome) and a special needs advocate. Meghan's daughter Gwendolyn was diagnosed in October of 2016 with a mutation in her SOX5 gene which would eventually come to be called "Lamb-Shaffer Syndrome". The journey of a proper diagnosis was 2 1/2 years in the making and when Gwendolyn was diagnosed there were only 10 people in the world with the same diagnosis. Today, Megan Yockey and Meghan Yarnall have spent countless hours to create a path for new families who are diagnosed which we didn't have when our journey started.


To date, Megan and Meghan have created a parents support group, a Facebook page dedicated to everything Lamb-Shaffer Syndrome, two non-profits to accompany our Lamb-Shaffer Syndrome efforts, a support group for families of Lamb-Shaffer Syndrome patients, countless fundraising efforts and two Lamb-Shaffer Syndrome meetups for our families.  We have also created a ribbon and a month dedication to raising awareness to Lamb-Shaffer Syndrome

Meghan's background is in banking which she has been in for over 10 years most recently at a local community bank where she lives in the Philadelphia suburbs. She grew up in a family of entrepreneurs and found her niche helping small business and real estate developers by offering them a banker who is focused on the relationship. Through her skills and successes in banking, Meghan has found it to be in her blood to network, meet people and listen to their stories because everyone is so unique. This follows through in all parts of her life as she is a true advocate for special needs families offering assistance to anyone she comes across. 

In her free time, Meghan enjoys spending time with her two daughters, her husband, and two Shih Tzus, Daphne and Freddie. You can always find Meghan listening to music, riding her Peloton or writing her blog (sox5sunshine.com) while she isn't with her family or working. If you can't find her in any of those places, look no further than the beach or someplace quiet with water nearby!

Meghan Yarnall