Rafael

Current Age: 2

Diagnosed at 2

​Brazil 

Yuval

Current age: 3.5

Diagnosed at 3

Israel 

Eleanor 

Current Age: 21

Diagnosed at 21

United Kingdom 

Addison

Current Age: 6

Diagnosed at 5

​USA

Gwendolyn

Current Age: 4

Diagnosed at 3 years and 4 months

USA

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LambShaffer.org  Lamb-Shaffer Syndrome/ SOX5 .

Holden

Current Age: 3.5 years

Diagnosed at 20 months

​USA

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Taylor

Current Age: 10

Diagnosed at 9

USA

Giselle

Current age: 11

Diagnosed at 10

USA

Oliver

Current Age: 3

Diagnosed at 2

USA

Sanne

Current Age: 16

Diagnosed at 14 

Netherlands

Arie

Current Age: 5

Diagnosed at 3

​USA

Meet Our Kids Diagnosed with Lamb-Shaffer Syndrome

Garrett

Current Age: 6

Diagnosed at 3

​USA

Ido

Current Age: 21 months

Diagnosed at 10 months

Israel

Charli

Current Age: 4

Diagnosed at 23 months

​USA

Ela

Current Age: 5

Diagnosed at 5

​Turkey

George

Current Age: 6

Diagnosed at 18 months 

USA

Harper

Current Age: 5

Diagnosed at 3

​USA

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Brianna

Current Age: 20

Diagnosed at 17

​USA

Izzy (Isabella)

Current Age: 7

Diagnosed at 7

​USA

Yalou

Current Age: 7

Diagnosed at 7

​Netherlands

Jarno

Current Age: 8

Diagnosed at 8

Holland

Khye

Current Age: 14

Diagnosed at 14

Austrailia

Charlie

Current Age: 4

Diagnosed at 3

Canada

Yuri

Current Age: 4

Diagnosed at 3

​Netherlands